Jereth went through two tests and got tubes put in his ears today. He's in the Pediatric Intensive Care Unit at St. Luke's Boise at least until he has all of the anesthesia out of his system and is considered stable enough to return home - possibly longer.
31 January 2011
27 January 2011
Gastroenterologist Visit
Today we took Jereth to Dr. Henry Thompson, the pediatric gastroenterologist. He will be checking to see how well the Prevacid and Zantac are treating Jereth's reflux. The problem with a baby like Jereth who has a floppy airway is that reflux can irritate the airway, making it even harder to breathe.
When the rerflux is treated the airway issues can clear up or at least improve a little. Dr. Thompson will be taking tissue samples from the esophagus as well as the intestines. He said we should know the results by Wednesday.
When the rerflux is treated the airway issues can clear up or at least improve a little. Dr. Thompson will be taking tissue samples from the esophagus as well as the intestines. He said we should know the results by Wednesday.
26 January 2011
ENT Specialist
We took Jereth to Dr. Jill Beck, the ear, nose, and throat specialist Dr. Walker referred us to. She is also the one who did a quick scope of his larynx at St. Luke's before we went to Primary Children's. She will be doing the follow-up from the work done on his throat in Utah.
She still has not received the report from Dr. Munz, the ENT in Utah who did the supraglottoplasty and bronchioscope. When I told her who had done the procedures she was quite surprised that she didn't get his report. I suggested she contact his office directly with the request since she knows Dr. Munz and figures the delay is not on his part but is more likely because someone at Primary Children's dropped the ball.
She still has not received the report from Dr. Munz, the ENT in Utah who did the supraglottoplasty and bronchioscope. When I told her who had done the procedures she was quite surprised that she didn't get his report. I suggested she contact his office directly with the request since she knows Dr. Munz and figures the delay is not on his part but is more likely because someone at Primary Children's dropped the ball.
22 January 2011
More Doctors - What Fun??
We met with Jereth's cardiologist again on Thursday. She has referred us to the ENT (Ear, Nose, and Throat Doctor) in Boise to follow up on the procedure Jereth had done in Salt Lake but the information from the ENT in Salt Lake has not been sent to either of them yet.
Next week the ENT would like to do a follow-up bronchioscopy to check Jereth's airway and see how he is healing from the supraglottoplasty (trimming of excess cartilage above his voice box). While he is sedated, she wants to bring in a gastroenterologist to take a look at Jereth's esophagus to see if the treatment he is receiving for reflux is effective or if something more needs to be done. During the same sedation, Dr. Walker wants to do a sedated echo cardiogram (heart study using ultrasound).
Next week the ENT would like to do a follow-up bronchioscopy to check Jereth's airway and see how he is healing from the supraglottoplasty (trimming of excess cartilage above his voice box). While he is sedated, she wants to bring in a gastroenterologist to take a look at Jereth's esophagus to see if the treatment he is receiving for reflux is effective or if something more needs to be done. During the same sedation, Dr. Walker wants to do a sedated echo cardiogram (heart study using ultrasound).
15 January 2011
3 Months Old Today
Happy 3 month birthday, Jereth!!
We took Jereth to the the heart doctor yesterday. She feels like Jereth is doing quite well with the feeding tube and the high-flow air. In fact, he is doing so well that she is not going to rush to get his heart surgery done as soon as we had expected. It's looking more like the end of March, hopefully during Spring Break.
We took Jereth to the the heart doctor yesterday. She feels like Jereth is doing quite well with the feeding tube and the high-flow air. In fact, he is doing so well that she is not going to rush to get his heart surgery done as soon as we had expected. It's looking more like the end of March, hopefully during Spring Break.
07 January 2011
7 January 2011
We've been home now almost a week. Jereth is stable and growing. He's over 8 pounds on both doctor's scales as well as on the home health nurse's scale.
We have lots of medical equipment in the basement to take care of Jereth. There's an air compressor, a humidifier, a feeding pump, and an oxygen monitor. The air compressor and humidifier are to keep 5 liters/minute of air flow to keep Jereth's airway open. The feeding pump runs his feed into his stomache (we took the NJ tube out when it got clogged and Dr. Mumford approved going back to an NG tube). The oxygen monitor is to let us know when he knocks the air tubes (canula) out of his nose and struggles to get enough oxygen.
I went back to work on Thursday. I'm sure I miss him more than he misses me since he has Daddy to take care of him during the day.
We have lots of medical equipment in the basement to take care of Jereth. There's an air compressor, a humidifier, a feeding pump, and an oxygen monitor. The air compressor and humidifier are to keep 5 liters/minute of air flow to keep Jereth's airway open. The feeding pump runs his feed into his stomache (we took the NJ tube out when it got clogged and Dr. Mumford approved going back to an NG tube). The oxygen monitor is to let us know when he knocks the air tubes (canula) out of his nose and struggles to get enough oxygen.
I went back to work on Thursday. I'm sure I miss him more than he misses me since he has Daddy to take care of him during the day.
04 January 2011
New Year's Day
Our trip home on New Year's Day began with a visit from the resident physician over the pediatric floor at 7:15 am. Since Jereth has the rotavirus we were told to expect fever and diarrhea for a few more days with a need for Tylenol and Pedialite for rehydration. The doctor asked how comfortable I would be taking him home with those additional needs. Of course I told her we were ready to go.
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