7 December 2010

Baby Bright-eyes

We met the physical therapist for Jereth yesterday. She came to the house to teach us ways to help Jereth conserve energy so he can use those Calories to grow.

He's struggling so much just to breathe that he doesn't have much energy left to eat, so he's getting more and more of his nourishment through the tube. The therapist tried a technique to get him to take more from the bottle, but after seeing how he struggled told us that it would be better to go ahead and give him almost all his food through the tube. That way he can use more of the Calories he is taking in to help him grow.

4 December 2010

Reflux Issues
Our home health nurse got to see firsthand on Thursday what happens each time Jereth spits up. It is a rough experience for him and he gets sweaty, pale, and clammy. She called the doctor's office to see if they would call in a prescription for reflux for him.

Friday we got a call from the doctor's office saying that Dr. Mumford was out of town but his partner, Dr. McGuffey had approved a prescription and we could pick it up at the local Albertson's so we'd have it for the weekend. So we went to Albertson's after I got home from work and the adventure started.

19 November 2010

Jereth has been taking a diuretic for a couple of days now. Although the excess fluid on his lungs has decreased - well at least he is breathing much more freely - he has lost fluid everywhere else, too. His weight has gone down and he looks emaciated, his legs and arms are tiny sticks and his eyes are sunken and dark.
We'll be seeing our family doctor this afternoon so we'll find out if this is normal.
On the plus side, he has been eating much better, so hopefully that will bring his weight back up and get him looking more healthy. He has been as awake and alert as before so that is a comfort, too.