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| Baby Bright-eyes |
He's struggling so much just to breathe that he doesn't have much energy left to eat, so he's getting more and more of his nourishment through the tube. The therapist tried a technique to get him to take more from the bottle, but after seeing how he struggled told us that it would be better to go ahead and give him almost all his food through the tube. That way he can use more of the Calories he is taking in to help him grow.
Today when I got home from school Jereth was without the socks we use as mittens to keep his fingers from catching the feeding tube and pulling it out. So of course he pulled the tube out - that's what we get for leaving the mittens off.
While he was without the feeding tube I made sure to get a few pictures. Back when he was in the hospital one of the nurses recommended taking pictures whenever the feeding tube was out. She called it a good photo op.
When the pediatric cardiologist's office called yesterday they asked permission to begin the process to schedule Jereth's open heart surgery. I'm hopeful we'll find out a few details of when and where his surgery will take place when we meet with Dr. Walker on Friday morning. She will also do a more detailed echocardiogram (ultrasound of the heart) at that time.
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